Community Development Manager

Company Description

The Sumaira Foundation is an international nonprofit patient advocacy organization dedicated to raising global awareness of rare neuroimmune disorders, building communities of support for patients and their caregivers, funding research and advocating on behalf of patients. We are proud to be patient-led, patient-powered, science-driven, evidence-based and therapy-agnostic.

The Foundation supports patients and caregivers through community-building initiatives, funds research, and promotes advocacy efforts. The organization's founding belief is that increased awareness will lead to advancements in research, care and better health outcomes. Learn more about the foundation at

Role Description

This is a remote role for a Community Development Manager - US. Responsibilities include building and nurturing relationships with community members, coordinating and managing volunteer activities, fostering connections within the rare neuroimmune communities, and advocating for the foundation's mission. The Community Development Manager will also spearhead initiatives to engage and grow support networks, collaborate with stakeholders to promote community outreach, and contribute to the foundation's overall goals.

Qualifications

• Strong Community Engagement and Communication skills
• Experience in Community Development and Volunteer Management
• Familiarity with Economic Development concepts and their community applications
• Passion for nonprofit work and advocating for patient communities
• Ability to work independently in a remote setting and manage multiple initiatives
• Prior experience in healthcare, patient advocacy, or related fields is a plus