Resource Search AssociateTurner Syndrome Foundation • Hazlet, New Jersey, United States
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Resource Search Associate
Turner Syndrome Foundation
- Hazlet, New Jersey, United States
- Hazlet, New Jersey, United States
About
Turner syndrome is a random mutation of chromosomes that occurs spontaneously at the time of conception and affects females. There is an absence of all or part of the second X chromosomes in some or all of the cells in the body. As an advocacy organization, our vision is to increase awareness, education and research for this complex disorder. Statistics show that Turner Syndrome takes the lives of 97% or more female fetuses. Our goal is to provide the 1-3% of survivors, who account to 1 in 2,000 females) with a chance at living a full and productive life while gaining additional knowledge and therapies for improvements. If a child does not exhibit classic TS characteristics, but is short and falling below the curve on the growth chart, has delayed pubertal development, presents verbally gifted, or expresses academic or social challenges, she may have TS. Diagnosis is confirmed with a Karyotype blood test. An endocrinologist will monitor the patient, screen for other conditions and provide specialized medical care, and treatments. Early interventions can promote a positive self-esteem and improved prognosis. 1-3% of Turner Syndrome babies will survive birth. 10-20% of all miscarriages are babies lost to Turner Syndrome. For every 2,000 females, one will be affected by Turner Syndrome. We have a great need for people to search for essential resources to support individuals affected by Turner syndrome. You can apply to be a Resource Associate. Turner syndrome affects 1 in every 2,000 girls and women. Most individuals will require some assistance to navigate their journey with TS. TSF provides a wealth of information online and we connect with clients to provide individualized caring support.
Responsibilities
Make calls
Write emails
Search online
Data entry
Flexible work hours
Long and short term commitment
Apply your skills to make real-world impact
About TSF Turner syndrome affects 1 in every 2,000 girls and women. Most individuals will require some assistance to navigate their journey with TS. TSF provides a wealth of information online and we connect with clients to provide individualized caring support.
Apply Candidates may apply here: https://turnersyndromefoundation.org/volunteer_take_action/talent-application/
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Languages
- English
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